A research partnership to support the sustained employment of people with intermittent, chronic health conditionsIssue 1 — January 2020
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Welcome to first ACED newsletter! Help spread the wordHere is the first of a twice-yearly newsletter designed to keep you abreast of the findings, tools, resources and events coming out of a five-year research partnership called Accommodating and Communicating about Episodic Disabilities—or ACED, for short. Led by the Institute for Work & Health, a Toronto-based not-for-profit research organization, ACED is developing evidence-based workplace resources to support the sustained employment of people with chronic, intermittent and often-invisible disabilities, such as depression, arthritis, HIV/AIDs, Crohn’s disease, ulcerative colitis, and multiple sclerosis. ACED launched a website in October 2019 to share information about the project, the partners involved, and the findings and tools. The ACED website also includes a sign-up form for receiving this newsletter. We invite you to forward this newsletter or the link to the sign-up form to others who may be interested in the findings and tools from ACED, including people with episodic disabilities and those who employ them. Go to the ACED newsletter sign-up form
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Get to know the people behind ACEDAt the helm of the ACED partnership is Dr. Monique Gignac, a senior scientist and scientific co-director at the Institute for Work & Health. She is supported by a 28-member team of advocates, service providers and researchers who specialize in episodic disabilities, including some members with lived experience.
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ACED seeking people to test new toolAre you an employee receiving or needing support for an episodic disability or health condition? Or do you supervise an employee needing this support? If so, we want your input on a new tool being developed by ACED called the Job Demands and Accommodation Planning Tool (JDAPT). We are testing the tool until the end of March 2020.
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ACED expertise informs federal reportThe federal government responded positively to a March 2019 report on the needs of people with episodic disabilities by the House of Commons Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities (HUMA). Three ACED partnership members were among those who provided expert testimony on episodic disabilities to HUMA.
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New StatCan report focuses on episodic disabilitiesUsing data from the 2017 Canadian Survey on Disability, Statistics Canada has taken a close look at the demographic, employment and workplace accommodation profiles of people with episodic disabilities in a new report released in December 2019. The report categorizes episodic disabilities as progressive, recurrent or fluctuating.
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Handout available to easily share ACED project informationLooking for an easy way to share information about the ACED project with others? The ACED project team offers a handout called The ACED primer. It asks and answers seven questions about ACED, from why the ACED project is needed to the people, organizations and funders behind it.
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For more information about the study, contact: Julie Bowring
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