The Accommodating and Communicating about Episodic Disabilities (ACED) project is housed at the Institute for Work & Health (IWH). IWH respects the privacy of the individuals with whom it communicates and recognizes the importance of protecting the privacy of all personal information. We take every precaution to ensure the privacy, accuracy and security of the personal information provided to us.
Research privacy & confidentiality
If you agree to participate in our research, all the information you provide will remain confidential. Information that could identify you will be removed from all data and will not be included in reports or publications about the study. All study data is kept in a secure, locked location at the Institute for Work & Health, and only research team members have access to the data. Full information about privacy and confidentiality will be provided to all participants before they agree to participate in a study.
For more information about IWH privacy and confidentiality policies and procedures, please visit www.iwh.on.ca/privacy-policies/research-privacy-policy.
If you have any concerns about the Institute's handling of private or confidential information, please contact:
Dr. Monique Gignac
Scientific Co-Director & IWH Privacy Officer
This study has been approved by the University of Toronto Human Research Ethics Program (HREP) and may be reviewed for quality assurance to make sure that the required laws and guidelines are followed. If chosen, the HREP may access study-related data and/or consent materials as part of the review. All information accessed by the HREP will be upheld to the same level of confidentiality that has been stated by the research team.
If you have questions about the ethical oversight of this study, you may contact:
Research Oversight and Compliance Office
Human Research Ethics
University of Toronto
If you contact the HREP, it may ask you which study protocol number you are calling about. Our current active protocol numbers are Protocol #33620 (Key Informant Interviews) and Protocol #37970 (JDAPT Pilot Test).
Collection and use of personal information
Personal contact information is provided to the Institute voluntarily by subscribers to our publications and e-alert notifications, or by those who wish to receive other information materials, products and tools. Contact information is also collected by Institute staff from time to time from public sources for people in the public domain (e.g. senior officials of government departments, workers’ compensation boards and health and safety associations) who may be interested in our research evidence, tools and activities.
The contact information is entered and stored in a secure corporate contact database, which is maintained by an administrator. The information is used to send out the IWH products, tools and/or information requested, as well as to inform people from time to time about other IWH products, tools, activities and information that may be of interest to them.
Collection and use of website data
The Institute maintains a primary corporate website (www.iwh.on.ca), the DASH (Disabilities of the Arm, Shoulder and Hand) website (www.dash.iwh.on.ca), and several additional sites configured as subdomains of iwh.on.ca, including for example, the websites of the PREMUS 2016 conference (premus2016.iwh.on.ca) and the CARWH 2016 conference (www.carwh2016.iwh.on.ca).
Occasionally, the Institute collects information from those who download a particular tool or guide. This information is used for research purposes, and to track and improve our content and delivery. We may also contact these people from time to time to tell them about other information available from the Institute that may be of interest to them.
Our websites contain links to other external sites. The Institute is not responsible for the privacy practices or content of these external sites. We encourage users to read the privacy statements of each website to which we may link. These websites may collect personally identifiable information.
For more information, please visit www.iwh.on.ca/privacy-policies/communications-privacy-policy